On a June day in 1986 my mom made a detour on the way home from grocery shopping. Her teaching colleague, Christopher Dennis, had some rhubarb for her. I sullenly wished mom had chosen to pick up her rhubarb some other time when I would not have to politely say hello to a man I didn’t know. This is probably one of the only times in my life I recall being shy. We crunched down a gravel driveway and there stood Christopher Dennis holding a brown rabbit. My Mom took a large shop bag ready to burst with rhubarb stalks and Christopher bent down so I could gently stroke the rabbit. “Would you like one?” he asked. He was serious but I knew my Dad would be equally serious about saying no. And that is how I met Christopher Dennis.

Safe by Taralyn Q
Years later after he died I sat in a coffee shop with his wife, Wanda, and told her this story. She said, “That’s my Christopher. You captured the essence of my soul mate with that story.” He made an impression with his kindness, his gentleness. He was sharing. He was funny. As Wanda puts it, “He died of a nice man’s disease” because she’s met so many wonderful people who suffer from it. Christopher died of Amyotrophic Lateral Sclerosis (ALS).
ALS is not a disease with a sudden onset. A person may have many small signs for years that can easily be dismissed or written off. Wanda recalls:
Diagnosis is one of the more difficult aspects of ALS and the reason being is it presents itself as, I’m gonna refer to as “silly” or minuscule, little symptoms in the beginning. And if you’re over the age of 50 you don’t go down to emerg or to your family doctor and say, “ Well you know, I couldn’t put a nut on a bolt the other day. There’s something very wrong with me.” Because you’d probably be laughed out of his office. And there were little things like this and we would laugh and I would say, “Well you know, you just turned 50, I think it’s time for me to turn you in for two 25-year-olds because they were little things, you know? He lost the muscle between thumb and forefinger first. His hit the extremities. Buy new shoes – where’s your toe? The toe wouldn’t come off the floor because those motor neurons were now destroyed… and those messages weren’t getting through.

Cornflower - the symbol of the ALS Society, Photo by dichohecho
In hindsight, they had gone through 18 months of symptoms. However, during those 18 months they had never once considered they might be dealing with ALS. They began to think they might be dealing with Multiple Sclerosis or a brain tumour even though the symptoms didn’t exactly fit. The wait for a neurologist was 6 months. Wanda called a nurse friend and told her what was happening with Christopher. They were at the neurologist’s office within a week. Christopher was diagnosed in the office that day with a 90% certainty.
What did they do after such a serious diagnosis? Wanda said the first thing that went through her head was the Sue Rodriquez story: “So I knew this was bad news, really bad news.” She asked if ALS was hereditary so she could let her stepsons know. The neurologist told her it was not and asked if she had any more questions. She said she didn’t then but would let him know next time. What happened next?
“We held hands and we walked out. And we went to Wal-Mart because we had to do a few things. We went to McDonald’s, we had lunch. We went home and did what we always did. And I started phoning a few people and he was up on the roof seeing what was going on with the skylights that were coming out. We got up the next morning and we went to work.”
I asked if this was shock in action. Wanda is certain it was not. It was acceptance. ”By the time we finally gave in to all these “silly little things”, these symptoms, and knew that it was not little any more. We were going there with at least one eye wide open as to we were gonna learn something.” They learned a lot – that life, though changed, must go on. Christopher stayed home from work by himself for two weeks to “turn his head around it.” He went back to work and finished out the school year. In the summer they reassessed. He decided to teach until Thanksgiving. He made it two days and “he knew.” He resigned and went home.
Wanda continued to work while Christopher maintained an amount of independence. She would make him breakfast and leave for the day. He would have his days to himself. Summer came again and they reassessed their situation. They decided Wanda would work until November 11, but she only made it to Thanksgiving. She said when she came home that Friday she just knew.
“Christopher I know you like your independence but I need you to think about something: Do you need me home?”
“I don’t need to think about what you asked me. I know I need you home now.”

Fresh Snow by Wonderlane
The decision was made. Wanda would take her sick days and spent every moment with Christopher. They had 6 months at home and only 10 days in palliative care. Wanda moved into palliative care with him. “When I married him the promises were to love, honor and protect. It was easy. He was an easy man to love. He faced ALS with a most unique attitude. He was accepting of it. He never “why me? “ or “woe is me.” Even in palliative we found things to laugh about. We continued to live , basically. It’s really funny that people think if you get a diagnosis like this you’ll go on this round the world trip…. no. Home. Home was our comfort before, and home was our comfort during and home was my comfort after. We spent our time together the way we always did.”
During one of those 10 days in palliative care Christopher had something he wanted to tell Wanda. He could no longer talk so deciphering the message took hours with Wanda asking, “vowel or consonant” and waiting for a blinked response. If it was a consonant she’d recite the consonants until she hit the right one. She started to ask, “Is this really important? Do you really need to say this?” He did. Two and a half hours later Wanda had the message:
“This day is just like the last day that we tapped the maple trees in St. Judes.”
“And I cried and I cried and I cried. Ran up and down the hallways. This was so important to him. It was a weird, ugly weather kind of day. Remembering this was important to him.” Another message Christopher left was written in a journal she’d left for him on the kitchen island. He did not write much by this time but he wrote to her:” Home is your comfort. You are my security and my greatest love.”

Tapped Maple Trees, Photo by Bob Clark
Just like they held hands when they left the neurologist’s office, Wanda and Christopher held hands until the end. He died in April 2004. Since his passing Wanda has taken part in numerous ALS Society walks and is now more deeply involved with the ALS Society of Newfoundland and Labrador. The Society is “small but substantial” says Wanda. “We supply equipment that can be serviced and sent out again: wheelchairs, lift chairs, hospital beds, scooters, breathing assists. We have some of the equip for feeding tubes, safety rails, bath tub chairs, endless equipment. Sent on courier the day it’s requested, all from one small office in Corner Brook for the entire province.”
I asked Wanda what her hope for the future is.
“My HOPE is to help open people’s eyes, spread awareness and shut the door. I want to see Cheryl (Executive Director) unemployed. We joke about that… being a little more realistic… I’m not so sure that I will live long enough to see it but I hope and pray my children, Christoper’s sons and his daughter (because he always said he had 3 chldren) live long enough to see the cause and hte cure found and hte door shut. Go big or go home. I dream big … and I dream in colour too. Without hope you have nothing. I have hope. It will happen. I believe.”
This year’s Walk for ALS will happen in Corner Brook on Sunday June 12 at Bennett Hall on West St. Registration begins at 12 p.m. and the walk will begin at 2 p.m. Please visit http://www.envision.ca/webs/alsnl/ for information on how to donate or take part.
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